I am pleased to announce the launch of an FMT discussion group on Facebook. This is a place to share experiences on home infusion, FMT clinics, FMT-friendly practitioners and donor testing. You may also wish to recruit others in your region to lobby local health practitioners and colonic clinics to offer FMT or local universities to conduct trials on FMT for your condition. The key is to present a united front and a compelling case that can't be ignored.
Intestinal dysbiosis hits people from all walks of life and when we are not blighted by brain fog, we are a smart lot. Hopefully the activities of the Facebook group will harness these resources and place more pressure on the medical community to catch up with the science. The research is conclusive on C Diff however more is needed on other gut conditions. The success of FMT treatment for C Diff has proven that properly screened FMT doesn't harm, so why not try it on other gut conditions where dysbiosis is a factor? It certainly is less harmful to the gut than anti-biotics and anti-inflammatories, which for many of us have caused more problems than they solved. My experience a year after FMT is a 50% improvement. FMT was not a miracle cure but it gave me the break I needed to keep fighting. I would not be here today without it.
I'm guessing you don't want your Facebook profile showing membership of a fecal transplant discussion group? To protect your privacy the group has been set up under the pseudonym Sally Brown. You can't find it via Internet search and only your friendship with Sally will display on your Facebook profile. To join please send a friend request to Sally. You will then be accepted into the group.
As always, discuss with your doctor and please do not rely on anything in the discussion group in the place of medical advice. All medical interventions come with risk. No responsibility can be taken for decisions made based on information shared in this discussion group. Please do not try and source a donor via the group. If events unfold that you decide to source a donor offsite via a friend made online, be sensible and apply all the necessary precautions including the full range of testing recommended in the CDD protocol for Recipient and Donor - and common sense in dealing with strangers.
Let's get moving to ensure backyard FMT becomes a thing of the past. Let's ensure that this Facebook site won't be necessary in a few years' time when safe, accessible FMT becomes available to those who need it through normal medical channels.
Let's also take a stand for the great micro biome within that left alone will nourish, nurture and protect us - until we mess it up. Digestive illness is then passed down from mother to child and on it goes. The reality is that we are 10 parts microbe, 1 part human. Many groups are formed to protect the environment. Let's do our bit to raise awareness of the environment within and the role dysbiosis plays in digestive illness.
Isn't it time you befriended Sally Brown?